My great aunt Claire passed away very recently after a long battle with alzheimers.
Being estranged from most of your family and seeing one of them you really liked die (there is a difference, whether people admit it or not between the people you love, and the people you both love and like, and the ones that love and like you back) is an experience I can't even really start to describe.
She was the twin sister of my mother's father, Francis, who died when I was about 11. As grandfathers go, he did the usual spoiling the shit out of me, and letting me get away with murder, etc, but more than that, he made me feel like I belonged, which was something I didn't feel a whole lot since then. Most of my memories of him have long since faded into oblivion, along with most of my other memories of that age, which were the single worst losses I could have endured, even considering all the other things that happened. But I had Claire. Like him, she was a charmer and a darling; a radiant, sparkling, generous person that was always kind of carrying the airs of the bon vivant while being sensitive and gracious... simply put, classy. She was this tiny and frail little thing a long time before she ever got sick, but her smile just sort of lit her up with this vibrant life, and she never just smiled with a smile, she smiled with her eyes.
There are a lot of things to say about Claire. She was one of the people who really showed me the value of femininity that I had always seen defamed or neglected in both male and feminist circles. Without her, I doubt that I ever would have seen it as more than a cabinet curio or a nice pair of shoes. As it turns out, it really is a thing that balances out many of the more senseless, brutalizing forces of the world; the sole antidote to many ills. In an era gone by, beautiful people were more than good looking people, but also people who spent all of their energy outward, for others, and in preparation to do that. She was really, really beautiful. She made everyone around her a little more beautiful. She made the world in her immediate presence beautiful. To be around her was to want to stay; to feel like it was all for you, that the universe was smiling upon you for a little while.
When she started to get sick, it all started to hit very quickly up to a point, but then crept into this slow, decimating decline. It was 8 years ago that I saw her and she was first leaning over and whispering to me to ask me what the words for things were as the aphasia started to "white noise" up her thoughts.
At my grandmother's birthday party, she didn't really remember us or our names, but she would give me that same old smile and touch our hands lightly and she would say "I know you" in a way I couldn't exactly know what she meant. But that was the way she was, she didn't really stop and think whether it was a good idea to love somebody. She just loved.
I have felt so bitter and so angry since it all happened, not just because I lost her, not because I haven't been able to grieve, or really parse through this all, but more because it's so cruel and unfair to have a disease not only kill you, but just dismember your mind day by day, wipe out the person that you are while you're still fucking alive. How could there be a worse thing in the world? I just feel so fucking enraged, just so fucking wrathful in a way that I can't let out, can't process, can't deal with. I mean it's so much worse than just death. How could it happen to someone I really loved? I just want to destroy, I want to scream, I want to swing my fists, I want to throw up, I want to undo it, I want to undo it, I want to undo it.
So all these things happened and all I have now is this word document my mom is showing off to my sisters and I where she eulogized her by talking about the origins of her name and her poor time management like a fucking wikipedia article and I want to print it out and burn it ten thousand times because it is so insipid and lacking. 91 years of life, 10 years of agony and what I have is a fucking .docx to remember her. But this is how they tell me how imperative it is that I show up to the family dinners that make me want to swallow ammonia rags, by not inviting me to funerals. Message received.